Fibromyalgia is declared as a new long-term disability

 Fibromyalgia long-term disability

After osteoarthritis, fibromyalgia is the second most common rheumatic disorder. Still, it is difficult to pick the fibromyalgia earlier, because its symptoms fluctuate.

This condition affects mainly women than men. It is characterized by the pain in all over the body accompanied with stiffness and fatigue.

According to Daniel Clauw, MD, professor of anesthesiology, University of Michigan, explained that the pain in processed in an abnormal way in the fibromyalgia.

He further added that pain sensation is amplified and can occur anywhere in your body. Due to this reason, chronic headaches, sensory hyper-responses, and visceral pain are very common in people with fibromyalgia.

Fibromyalgia can also impair your functionality and can interfere with the activities of daily living.

Also, it is reported that people with fibromyalgia aren’t getting the services that they should need. Swallowing the pills and implementing other successful strategies could be extremely helpful for controlling the fibromyalgia, but, as no cure exists for fibromyalgia, it’s difficult to completely eliminate this disease.

In several states, fibromyalgia has been considered as the long-term problem, decreasing the quality of life.

Why should fibromyalgia be considered as the long-term problem?

When the symptoms come and go, it makes the person much more exhausted and irritated. Dealing with fibromyalgia sounds easier but people living with fibromyalgia would better understand that how they combat whenever the symptoms spike up.

The intensity and severity of the disease can leave a negative impact on your work performance. While experiencing the symptoms of fibromyalgia, your desk job would be much more difficult than anyone’s expectation. Additionally, triggers can worsen your condition too.

The symptoms of fibromyalgia won’t let you excel more profoundly and somehow, you would prefer resting at home instead of getting to work.

Any long-term problem needs the long-term support and care. But unfortunately, the people with fibromyalgia don’t get the optimum level of attention.

Fibromyalgia is difficult to understand, not just because of its clinical signs, in fact, its relapse and remission phases are also confusing.

If you haven’t get the fibro flare up since a long time, you’re lucky, but it doesn’t mean that you won’t get flare up again.

And when symptom spikes up, it is terrible to even think about doing any task, either it is related to your work or house.

Fibromyalgia is now a long-term disability

With the help of three-year efforts of patient and client council in Northern Ireland, the fibromyalgia has been declared as a long-term disability.

Now, the dedicated services can establish the trusts and centers for managing the fibromyalgia as a long term condition.

Patients can get the medical advice and interventions from the medical care professionals. Also, it is hard to decide which alternative therapy will best suit you to manage the fibromyalgia; so, you can also get the information regarding the therapies.

As pain is the major complaint of most of the fibromyalgia patients, most of the medications would be given to treat the pain perception; however, other symptoms are less noticed.

Increased awareness about the condition could help the earlier detection of this disease. Also, if people around you, like friends and family members, are well-aware about the fluctuations of the symptoms and behavioral issues, then, they may provide you the higher level of comfort and can participate in doing household chores. Fibromyalgia awareness could make the life of the person’s easier.

It is also suggested that the relationships of the person with fibromyalgia might not be healthy with his colleagues, friends and family. It happens because the people around you have little knowledge about this disease.

By increasing awareness programs, not only the person combating with fibromyalgia is educated, yet, the non-sufferers would also get the idea of how to deal the person with fibro, how one can help them and what let them feel better.

On the other end of the spectrum, the legal declaration of fibromyalgia as a long-term disability can also let the medical practitioner know more about this disease and suggest the effective drug for the ultimate suppression of the symptoms.

Availability of the fibromyalgia treatment is also a serious issue. In clinical practice, the availability of the services is not same due to the insufficient resources for targeting the specific population more efficiently.

People with fibromyalgia often feel isolated and alone. Their social isolation could be a barrier for getting the treatment. Clinicians would find this very difficult to deal. So, clinicians should also welcome the sharing of information and knowledge from the patient.

Also, more researches will be conducted to find out the ways that can improve overall health.

Long-term disability insurance and its benefits

It’s harder and harder to persistently do the work and remain in the workforce while battling with the fibromyalgia.

In fact, it also happens that people continue their work even dealing with the pain, fatigue, headache and migraine occur due to fibromyalgia.

As long-term disability insurance is already available in several countries, one could be less worried about the financial burden of medicines, regular check-ups, and other expenses.

Symptoms of fibromyalgia can be disabling. On the basis of subjective complaints and physical examination, a doctor can verify and identify the fibromyalgia.

There is several type of long-term insurance disability available. But, you should have an idea about which long-term disability insurance would be good for you.

 Serious consideration leads to better outcome

Fibromyalgia’s recognition as a long-term disability will surely increase the awareness and knowledge of the condition not only among the medical professionals, yet, the non-medical people will also know about the features of the fibromyalgia.

After diagnoses of fibromyalgia, the patient will get a pathway, through which one can get the complete information regarding medicines, exercise, and other alternative therapies.

Lifestyle changes could play a vital role in improving the condition of fibromyalgia. The management of fibromyalgia is a multi-disciplinary approach, in which every intervention has its own importance.

If you would neglect any one of them, the symptoms can be aggravated. So, treating fibromyalgia is all about how efficiently the medical professionals picking up and treating the disease and how strictly the patient following the prescribed technique.

REFERNCES:

http://www.bbc.com/news/uk-northern-ireland-37424804

https://www.frankelnewfield.com/fibromyalgia-recognized-long-term-condition-ireland/

http://www.belfasttelegraph.co.uk/news/health/fibromyalgia-is-recognised-as-a-condition-35068733.html

http://www.belfasttelegraph.co.uk/news/health/fibromyalgia-is-recognised-as-a-condition-35068733.html

http://www.news-medical.net/news/20150518/Fibromyalgia-now-considered-as-a-lifelong-central-nervous-system-disorder.aspx

35 Comments

  • Im happy they finaly approve it. But is so crazy, I was lucky enough 10 years ago to get it at my first try. But after all does years my amount has been the same only increasments of $2-$5 in 10 years and I only get $496 per month who can live on that amount. So just imagine that in 10 years they only have increased my disability $ a total amount of around $80 so that this mean if is being agnolage as a real disabily for everyone who has Fibromyalgia they might give us a little bit more $ . thanks

    • Bless you I know how you feel. I had my first hip replacement at 26 since then I’ve had 3 more plus, elbow, shoulder and jaw. I have chronic arthritis and fibromyalgia and I get £510 a month. That has to pay for bills, food, clothing. I would love to go back to work but can’t. But the amount to live on is a joke. Keep going my fibro friend

  • This seems great news does anyone know how this would affect ill health retirement? As my company’s dr is saying it’s not permanent so I don’t fit the criteria? I’m in the uk, any advice would really help me Thank you

  • I think I was born with FM. I can write a book of my experience. If any one needs to know, the symptoms at a very young age you can ask me.

    • Hi Christine!
      I think I was born with it too! Lol (It is no laughing matter and I don’t take Fibro lightly) I’m almost 47 and was diagnosed around age 22. You are not alone!

      • I got diagnosed this year after many of years being told its in my head and im young and healthy by my doctor, but it got to the stage I couldn’t cope with the pain, had mri scans came back fine and then had blood tests. Tested positive hla b27 and low iron levels but still not had proper diagnosis from that.. then finally got referred to rheumatologist after alot of stress trying to get the doctor to get a specialist and then I got diagnosed with fibromyalgia in August or September this year.

  • I too would be interested to hear how this affects I’ll health retirement in the U.K. My company dr tells me that as it’s not classed as permanent I don’t qualify for retirement .

  • Fibromyalgia is not recognized in the UK, it is merely a ‘box’ that doctors put the patient in when no others answers can be found!

  • my doctor recognized it and im in uk supose it depends on the doctor u see some just want u in and out as quick as like the first one i saw told me it was all in my head,next day saw a different doctor,he told me i have fibro,ostio artritis and something called eyrethromelelalgia that not many doctors know about its more the older ones coz they have been in the game longer,my advice if ya not getting anywere wiv ya doctor change to another one.

  • After years of pain, different dr’s. being told to lose weight, so I did. Exercise, I do. Physical therapy. I finally, just today, got a diagnosis of fibro.
    Oh blood tests that show nothing. My head is spinning

  • I have fibro and was diagnosed 2 yrs ago now – was recommended ill health early retirement – so I applied and was turned down and not considered a permanent disability – with the next breath I was sacked for being too ill to work! I am just turned 60 yrs old and have never felt so ill.

  • Im newly diagnosed and have been off sick since August. The pain isnt controlled with medications, there are days when I struggle to get out of bed never mind exercise! Ive been awarded disability but not mobility as they say I can walk up to 200m before am in severe pain….thats not gonna happen even on a good day! Its great that fibromyalgia is finally recognsed as a long term disability but is this in the uk too?

    • I’ve just had my motarbility taken from me that I’ve had for 5 years as PIP say I can also walk. I told them I’m always in pain and don’t walk but they got their own answer out of that!!! I am appealing. It’s permanent and awful!!

  • As far as I can see this has only been approved in Ireland and just recently USA although Ive read many there end up going to court to try & obtain disability as they’re finding it very difficult to prove they have fibromyalgia. Its a wretched condition, had it 14 years now. May I suggest you all go to the website Living Smarter with Fibromyalgia written by Lisa, a lady who has had this for 40years. Very extensive knowledge about Fibromyalgia incl. Symptoms, supplements, food, exercise & coping advice here. Everything you need to know & shes extremely supportive & helpful. I have no idea whether Australia will come on board with classifying Fibro as a long term disability. At present people are being put on Newstart which is a package for unemployed, which means fibro people are treated the same as unemployed et al expected to apply for jobs, maintain a diary and prove they have applied for work each fortnight, otherwise this benefit is cut. Wishing you as much wellness as you can muster fellow sufferers. My heart goes out to you

  • I was recently denied for the third time in my life. I first applied in 2012, I can’t believe I didn’t get it this time. The system keeps saying I can work, cause I was in Law Enforcement for 26 years, so I can do a sit down job…..smh in tears, it crazy! I’ve been in pain since my early 20s but tried to keep working. I’m 45 now, I have DDD and Siactica too! I wish I could get more help!…….From Louisville KY (USA)

    • I understand your pain. I live in Tennessee and have been denied , I think 4 times. They say I’m to young and can go back to school, get more training for better paying jobs, etc. I walk around feeling just dumb and stupid, like sometimes I just don’t get things. I work part time, and it’s hard, just to get up in the mornings. I’m late everyday and I wish I could hibernate for the winter. Much lunch to you guys. Sign up for some Fibro sites. It’s like a sounding board and post how you feel each day and just learn from people who really understands you.

  • A have also been knocked bk for pip n have been bk in hospital 4 times since applying with flares and bowel problems a look 9 months pregnant doctors in hospital have said am showing all signs n put on to pain team but that’s a full year of being ill lost all my family n friends as they think am just being lazy am a total recluse now only go to chemist for meds feel like a old women even trying to lie down hurts xx

    • 3 years ago I was having bowel problems and looked pregnant with ballooned belly. It turned out after 8 months of being miss diagnosed by my GP that I had stage 3 ovarian cancer. I don’t want worry you but I would ask you GP for a CA125 blood test.

  • I was diagnosed about 2 years ago in the UK by the doctor and then the hospital. I have been on the CBT course which is very good all about managing the pain. I take a number of medication which has been given to me by a pain specialist doctor based In Macclesfield UK. I have seen physios to try and help and have just been referred for splints for my hands. Unfortunately you have to push for all of this but it is all available in the UK.

  • I have been diagnosed with fb for over 4 years now. I still work great boss and team workers. I do the shifts I can. I do have pain 24/7. I have other symptoms saying the wrong word or not finding the word. Tremours which I was told had no connection to fb but have no answer to it. I am single and worry about my mortgage I rang up about what would happen if I finish work to be told it would not be covered by my ppi. Any advice welcome.

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